U.S. 5-year-old girl terminally ill to seek treatment in Beijing, China
Louisville, Kentucky city of 5-year-old girl Hailei old Lan Fuluo children suffering from a rare fatal disease - Batten's Disease, if not for medical treatment, she died immediately, but at present there is no medicine in the world. Despair, Hailei mother to ask Beijing, China, is a pioneer in the treatment of the disease therapy - stem cell therapy. In order to save her life, she raised many of the 100,000 U.S. dollars to save money, with a small Hailei ready to fly to Beijing via Canada. However, a few days ago when the mother and daughter at the Vancouver International Airport ready to turn for the better, but the airline was unable to ensure that children with refusing on grounds of air safety. After twists and turns, small Hailei to Beijing's "life channel" finally on July 2 has been opened! 5-year-old girl suffering from a rare fatal disease

Hailei 2-year-old was found suffering from a rare fatal disease of children - Baytown's disease. Department of genetic defects caused by the disease, patients with brain as a normal person can not produce the same brain cells to clear the rubbish enzyme. Finally, brain cells refuse to be cumulative, so as to kill normal brain cells. Usually occur in patients with blindness, aphasia, and other symptoms, which developed into a full-body paralysis and eventually death.

Up to now, there is no effective drug treatment can even check Baytown's disease, so patients with the disease rarely survive beyond the age of 12. To make matters worse, Hailei Carter's brother was also recently diagnosed with Batten disease, but, because of the symptoms a little younger than light. According to statistics, 100,000 children in the United States each have 2-4 such cases.

Airlines were in critical condition refusing

As the disease progresses to increase day by day, gradually Hailei small blind, or even to the development of the whole body paralysis. Despair, and her 26-year-old mother to inquire about Miranda, on the other side of the earth as far away as Beijing, China, the experiment is a pioneer of Baytown's disease therapy - stem cell therapy, is said to good effect. In June this year, with a multi-Miranda to raise 100,000 U.S. dollars to the charity, carrying life hanging in the front line of small Hailei fly to Canada, ready to fly to Vancouver via Beijing to seek China. And before that, Miranda has been to the Beijing Hospital of the pre-paid 40,000 U.S. dollars the cost of treatment.

However, the mother and daughter at the Vancouver International Airport ready to turn for the better, but encountered unexpected trouble. June 23, they boarded the trip to China Airlines flight, the stewardess careful note of a number of small Hailei systemic vascular congestion, they immediately asked the plane to the airport clinic for examination. For ensure the safety of air passengers, China Airlines eventually rejected the request of small Hailei boarding.

"Air ambulance" broke down half-way

In desperation, Miranda signed a visit to Air Canada's flights to Beijing. However, Air Canada staff for the same reasons, Miranda asked to ensure that the letter issued by doctors in order to ensure that small Hailei safe flight. Due to leave their homes when they do not have the appropriate documents ready, so mother and daughter Miranda of the second aircraft was refusing. Vancouver forced to remain small Hailei had admitted to a local hospital for a few days after her condition to deteriorate further.

June 27, the mother and daughter Miranda to catch one of the "air ambulance", ready to fly to Kentucky at home. However, the plane flew in the city of Spokane, Washington, was forced to land due to mechanical failure, in order to carry out maintenance. Lost Miranda said: "She (Hailei) should have arrived in China, there is hope to get better. But now, we have a very disappointing."

"Life channel" to open an exception

Condition deteriorated small Hailei were sent to the city of Spokane to a local hospital. Eyes looking at her daughter's life is a little dim light go on, Miranda faces two immediate options: either immediate access to doctors to ensure that the letter, a trip from the United States to catch the plane to fly to China or medical trip charter flights The latter must be as high as 125,000 U.S. dollars to pay the huge costs of charter flights.

Miranda told reporters in despair: "I have heard that the United States pharmaceutical companies are developing the Batten disease drug effects, and have been close to success. But before that, we have to fight for time, and flew to China is our only choice. No matter How, I do not want to spend the rest of his life in regret, no matter what the final outcome. "

Later, a mother and her daughter Miranda finally flying home. Hailei issued by a doctor for the small to ensure that the letter, and the local Member of various efforts and eventually persuade the United Airlines made an exception to allow her boarding. July 2, mother and daughter finally boarded a non-stop in Beijing, China, the United Airlines flight to begin their "journey of hope."